The story of nine year old Taylor King caught our eye in a recent posting on the Southeast Fly Fishing Fourm. Taylor suffers from Batten disease which is a neurodegenerative disease which most often strikes infants and children. The disease is always fatal. Taylor just underwent life extending surgery in Portland, Oregon. She came through well and is recuperating there now.
Taylor's friends and family are holding a "Fairy Tale Ball" February, 8th 2008. There will be a silent auction with proceeds going to the search for a cure for Batten disease. Members of the SEFFF have donated a guided fishing trip to be auctioned for this worthy cause.
From Taylor's website:
Taylor's Fairy Tale Ball will take place at Roof with a View on Hill Street near uptown Charlotte at 7:30 p.m. on Friday, February 8, 2008. Join us for this magical evening to support the search for a cure. In addition to fine food, music and dancing, guests will have the opportunity to bid on great items, including golf lessons, theater tickets, videography services and a two-week stay in Berlin, Germany, in a silent auction. The evening's program will feature David Pearce, Ph.D., a world-renowned Batten Disease expert from the University of Rochester. Tickets are $75 and include a tax-deductible donation to Taylor's Tale and the Batten Disease Support and Research Association (BDSRA).
Read more about Taylor and her family via their website: http://www.Taylorstale.com
For more information or to purchase tickets contact Lauren Maskowitz.